FTD/PPA Study Recruitment

We need you to help us build a better assessment for behavioural variant Frontotemporal Dementia (bvFTD) and Primary Progressive Aphasia (PPA).

Participate

Why participate:

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Help dementia research

The available assessment for dementia is complex, long and can be stressful. We are building better tools so that we can help evaluate dementia more quickly and in the comfort of your own home. We hope to be able able to detect changes in brain information processing that cannot be detected with other tests.

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Support innovative science

Your help will be contributing to an effort to bring innovative technology to dementia research. Winterlight Labs was founded upon research from the University of Toronto. For this study we are partnering with Alector, a biopharmaceutical company developing medical treatments for patients with FTD and other neurodegenerative diseases.

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We value your time

The research study is easy to participate in an there are no visits to any sites required. If you agree to take part, Winterlight will send you an iPad by mail. Over a 12 month period you will complete 6 assessments using the Winterlight app that take about 15 minutes each to complete. At the end of the study you will get to keep the iPad!

Eligibility:

Criteria

  • You must be between the ages of 45 and 90.
  • English must be your first language or you must speak English as a second language with conversational proficiency.
  • A physician confirmed diagnosis of bvFTD and/or PPA (all variants) within the previous 12 months.
  • Availability and willingness of a relative or caregiver to administer the Winterlight Assessment (WLA).
  • WiFi access during testing with the WLA.
  • No concussion or other traumatic brain injury sustained in the last 12 months.
  • You must not have significant vision impairment. Corrected vision is acceptable.
  • You must not have significant hearing impairment. Use of hearing aids is acceptable.

Participate

If you are interested, please give us a call at 1-833-WINLABS (1-833-916-5227) or contact us with the form below.